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login.mayo.edu › adfs › lsSign In - Mayo
- https://login.mayo.edu/adfs/ls/idpinitiatedsignon.aspx
- Sign in to this site. Sign in to one of the following sites: Site selections ACS.org - InCommon AdobeID Aha Aha Care Delivery Ideas Portal Aha CDH Portal Aha DA Portal Aha for EOAM Aha Ideas Portal Aha MC Analytics Ideas Portal Aha Patients Ideas Portal Aha Providers Ideas Portal Aha Requests Portal AirWatch Akana - Alpha Akana - Beta Akana ...
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Rare Diseases in the Age of Health 2.0
- https://books.google.nl/books?id=F-a9BAAAQBAJ&pg=PA287&lpg=PA287&dq=rdcrn+login+portal&source=bl&ots=eJlPvgy5Oa&sig=ACfU3U3Hbql1SgE55FM6VOQQp_kiaN-6-A&hl=en&sa=X&ved=2ahUKEwig3P_V5KT3AhVUg_0HHWngAkgQ6AF6BAgYEAM
- Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons · 2013 · Technology & EngineeringFor example, the 17 disease-specific consortia of the RDCRN have ongoing ... Access and accepting central Institutional Review Board has been shown to be ...
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RDCRN Login
- https://members.rarediseasesnetwork.org/
- Welcome to the RDCRN Login Page. To access the RDCRN, please choose your organization to verify your credentials. You may search for your institution by name or by typing your institutional email address, select it from a list, or choose from our suggested selections. ... Support Portal. 2021 Rare Diseases Clinical Research Network ...
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Rare Diseases Epidemiology: Update and Overview
- https://books.google.nl/books?id=SABCDwAAQBAJ&pg=PA135&lpg=PA135&dq=rdcrn+login+portal&source=bl&ots=mPUwXizedE&sig=ACfU3U2cSBxw0v_ouf3Xc2TDpFbuELOVuA&hl=en&sa=X&ved=2ahUKEwig3P_V5KT3AhVUg_0HHWngAkgQ6AF6BAgZEAM
- Manuel Posada de la Paz, Domenica Taruscio, Stephen C. Groft · 2017 · MedicalTo enhance recruitment in clinical studies the RDCRN consortia utilize a ... (http://rarediseasesnetwork.epi.usf.edu/) serves as a portal for the rare ...
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RDCRN Grants Portal
- https://grants.rarediseasesnetwork.org/
- RDCRN Grants Portal is a platform to run NIH-style grant competitions including pilot projects and research awards. Current Grants Pilot Projects of the Brittle Bone Disorders Consortium. Announced: 10/18/2021 Submission Period: 11/01/2021 - 01/01/2024 RFA;
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Small Molecule Therapy for Genetic Disease
- https://books.google.nl/books?id=RWIFNJjBJOIC&pg=PA26&lpg=PA26&dq=rdcrn+login+portal&source=bl&ots=6BX5YjAGCP&sig=ACfU3U3fFziSV2wyXMI5WLKAx1oxRjajFA&hl=en&sa=X&ved=2ahUKEwig3P_V5KT3AhVUg_0HHWngAkgQ6AF6BAgaEAM
- Jess G. Thoene · 2010 · Medical... a portal for access and integration of public data resources; and (5) promote novel communication and coordination of RDCRN and consortia activities.
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Home | Rare Diseases Clinical Research Network
- https://www.rarediseasesnetwork.org/
- Their staff are specialists. Contact them at 1-888-205-2311 or email [email protected]. Who We Are Established by Congress under the Rare Diseases Act in 2002, RDCRN is an initiative of the Office of Rare Diseases Research (ORDR) at the National Institutes of Health's (NIH's) National Center for Advancing Translational Sciences (NCATS).
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Rare Diseases Clinical Research Network (RDCRN) | National ...
- https://ncats.nih.gov/rdcrn
- The RDCRN program is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing. Through the RDCRN consortia, physician scientists and their multidisciplinary teams work together with patient advocacy groups to study more than 200 rare diseases at sites across the nation.
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RDCRN Status
- https://status.rarediseasesnetwork.org/
- Zoom Web Portal Operational Zoom Download Center Operational Zoom ... RDCRN Login Page Response Time Fetching. Past Incidents. Mar 29, 2022. Production Security Patching. Completed - The scheduled maintenance has been completed. Mar 29, 05:00 EDT ...
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About Us | Rare Diseases Clinical Research Network
- https://rdcrn.org/about
- An internet-based web-portal to serve as a central access point to information generated by the RDCRCs Administrative Core Overall coordination for the RDCRN and management of RDCRN activities, including steering committee meetings Oversight and coordination of all DMCC Cores Support for Coalition of Patient Advocacy Group meetings
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RDCRN Training Opportunities | Rare Diseases Clinical ...
- https://rdcrn.org/researchers/training
- a web portal with course content, opportunities for interaction among trainees, and interaction between trainees and teachers/mentors; a "capstone" research project presentation at the semi-annual RDCRN meeting; and; a pre-and post-test to quantify understanding of the topics involved in RDR prior to and following the curriculum.
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RDCRN Training Opportunities | Rare Diseases Clinical ...
- https://www1.rarediseasesnetwork.org/researchers/training
- .wrap{ width:90%; margin-left:30px; } .resource-img { display:inline-block; width:400px; vertical-align:top; padding-bottom:15px; padding-right:30px; } .resource-text ...
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The NIH Rare Diseases Clinical Research Network (RDCRN ...
- https://www.rarediseasesnetwork.org/spotlight/december2010/rdcrn2
- The DMCC also created RDCRN's central public Web site, developed as a portal for the rare diseases community, including patients and their families and health care professionals, to provide information on rare diseases, relevant research, and other activities. Located at www.RareDiseasesNetwork.org, the web site had over 2.8 million visits in 2009.
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RDCRN Public Documentation - Confluence
- https://rdcrn.atlassian.net/wiki/spaces/RPD/overview?homepageId=2261109
- These pages are intended to serve as a brief introduction to the new DMCC's secure, cloud-based web portal for RDCRN members and is meant to answer the most commonly asked questions. Of note, our systems are likely to change frequently, in both design and content, over the next several months as new functions are developed and come online.
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How-to articles - RDCRN Public Documentation - Confluence
- https://rdcrn.atlassian.net/wiki/spaces/RPD/pages/187858955/How-to+articles
- RDCRN Grants Portal ... RDCRN Login Process: Michael Wagner: Apr 26, 2021: RDCRN Members' Landing Pages: Michael Wagner: Dec 10, 2020: RDCRN Pedigree Drawing Tool: Michael Wagner: Dec 09, 2020: Getting Started with RDCRN SAS Studio: Kelly Olano: Dec 03, 2020:
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Developmental Synaptopathies Consortium - Request For ...
- https://grants.rarediseasesnetwork.org/grants/DSCPilotProj
- Your application must be received by 12:00 a.m. E.S.T on April 15, 2022 to be considered for the grant. Please use the "Apply Now" button below to start your application submission for the RDCRN DSC pilot feasibility core grant. Please contact [email protected] if you have any questions regarding the application process.
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Log in - Elsevier
- https://authors.elsevier.com/tracking/authentication/login.do
- Log In Register Help Edit Details Change Password Logout Log in Please note you will not be able to use your existing Elsevier Profile, but will have to create a separate profile to access our Article Tracking pages. Username Password Login Forgot your username/password? Don't have an account? Create account
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Pilot Projects of the Brittle Bone Disorders Consortium ...
- https://grants.rarediseasesnetwork.org/grants/BBDCPilotProj
- The Brittle Bone Disorders Consortium (BBDC) initiates and supports collaborative research on osteogenesis imperfecta (OI). In addition to a longitudinal study of OI and interventional studies, the BBDC welcomes both consortium members as well as non-BBDC investigators to propose pilot studies in OI that leverage BBDC research data or infrastructure.
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RFA-TR-18-021: Data Management and Coordinating Center ...
- https://grants.nih.gov/grants/guide/rfa-files/RFA-TR-18-021.html
- June 19, 2018 - Notice of Pre-Submission Webinars for RFA-TR-18-020: Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (RDCRN) (U54 Clinical Trial Optional) and RFA-TR-18-021: Data Management and Coordinating Center (DMCC). See Notice NOT-TR-18-029.
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RFA-TR-18-020: Rare Diseases Clinical Research Consortia ...
- https://grants.nih.gov/grants/guide/rfa-files/RFA-TR-18-020.html
- The Rare Diseases Clinical Research Network (RDCRN) is a cooperative network composed of multiple Rare Diseases Clinical Research Consortia (RDCRC) and a Data Management and Coordinating Center (DMCC) (see RFA-TR-18-021 ) to facilitate clinical research in rare diseases carried out by the RDCRCs. This FOA invites applications for the RDCRCs.
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REDCap - National Center for Advancing Translational Sciences
- https://ncats.nih.gov/expertise/clinical/redcap
- REDCap. Research Electronic Data Capture. (link is external) (REDCap) is an easy-to-use, free software tool for clinical study management and data capture. Originally designed to support data capture for research studies, this secure Web application has been expanded to provide investigators with the ability to create standardized surveys ...
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MGNet Scholar Research Funding Program | Rare Diseases ...
- https://www1.rarediseasesnetwork.org/mgnet/scholar
- Application Due: November 20, 2020 5 p.m. EST. Funding commences: July 1, 2021. There is a critical need for investigators prepared to conduct clinical and translational research in myasthenia gravis (MG). The MGNet Scholar Program provides individualized training and mentorship in one of two tracks, Clinical Research or Biomarker Development ...
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VCRC > Medical Professionals > How VCRC Is Unique
- https://www1.rarediseasesnetwork.org/cms/vcrc/Medical-Professionals/Unique
- 3. The VCRC-VF Fellowship Program. The VCRC-VF Fellowship is a mentored training program of up to two years for physician-investigators who have a strong interest in vasculitis and wish to pursue a period of specialized training with an emphasis on clinical and/or translational patient-oriented clinical investigation.
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Web-Based... - Rare Diseases Clinical Research Network ...
- https://www.facebook.com/RDCRN/posts/10166244152335092
- Web-Based Tool Predicts Lamina Propria Fibrosis in Eosinophilic Esophagitis New research from the #RDCRN's Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR):...
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Connecting Rare Disease Patients and Families with ...
- https://www1.rarediseasesnetwork.org/index.php/node/134
- Connecting Rare Disease Patients and Families with Informational Resources on COVID-19 The patient advocacy groups that partner with the Rare Diseases Clinical Research Network are working to support rare disease patients and families during the COVID-19 pandemic. Collected here are several resources they have developed to support their patient and family communities.
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"My... - Rare Diseases Clinical Research Network (RDCRN ...
- https://www.facebook.com/RDCRN/posts/10166285406320092
- "My career goal is to become an expert in early lung disease outcome measures in young children with primary ciliary dyskinesia (PCD), build our understanding of the clinical course of progressive...
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UCDC > Get Involved > Studies > 5112
- https://www1.rarediseasesnetwork.org/cms/ucdc/Get-Involved/Studies/5112
- Participants enrolled in the RDCRN UCDC Contact Registry will receive an email inviting them to participate in the study. Interested participants will be directed to the informed consent document. After agreeing to participate, participants will be directed to the study web portal.
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Osteogenesis Imperfecta (OI) Quality of Life Survey
- https://www1.rarediseasesnetwork.org/cms/bbd/7702
- The purpose of this study is to identify questions about the quality of life for people with Osteogenesis Imperfecta (OI). Quality of life is defined as an individual's opinion of the quality of his or her daily life and includes emotional, social, physical environment and health related dimensions. It is important to see if the standard ...
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